thegooftroopfla 18 Posted August 18, 2015 Author Report Share Posted August 18, 2015 We were able to return home to Florida till December. Hopefully he stays pretty good until then. Good news. He was granted make a wish and he wished for the Walt sweet on a cruise to at Thomas. They couldn't grant the Walt suite, which we totally understand, but we are going in the fantasy at the end of September. Our next Disney trip planned is the fort for Halloween. Halloween can't come soon enough. We might do an overnight trip to night of joy also, but who knows. We need our Disney fix. Thank you to everyone for the advice Quote Link to post Share on other sites
mouseketab.....Carol 1,261 Posted August 18, 2015 Report Share Posted August 18, 2015 Happy to hear that things are smoothing out. Hope your cruise gives you lots of fun! Quote Link to post Share on other sites
Beckers 1,136 Posted August 18, 2015 Report Share Posted August 18, 2015 Glad to hear you are home !! Quote Link to post Share on other sites
BradyBzLyn...Mo 2,023 Posted August 18, 2015 Report Share Posted August 18, 2015 Glad to hear you're home and hope that you have a terrific time on your cruise!! Also hoping that we'll get to see you for Halloween. :) Quote Link to post Share on other sites
thegooftroopfla 18 Posted August 27, 2015 Author Report Share Posted August 27, 2015 http://www.abc2news.com/news/region/baltimore-city/florida-boy-with-rare-condition-gets-help-at-hopkinshttp://www.wptv.com/news/region-c-palm-beach-county/west-palm-beach/acreage-10-year-olds-medical-mystery-solved-hopes-to-help-others For those of you that have been follow Along here are two stories done about our son. If you click on the picture in both articles it is actually the video of the news cast. For some reason a lot of people have thought it was only an article. He has been broadcast over 26 times in different cities and national news like newsie. He was actually science dailys medical discovery of the week a couple weeks ago. Thank you all for giving advice and following along. We still have a long road and a lifetime of treating his conditions, but we are definitely on the right path. BradyBzLyn...Mo 1 Quote Link to post Share on other sites
CCIntrigue...aka Gwen 547 Posted August 27, 2015 Report Share Posted August 27, 2015 Thank the Lord for this miracle! I will continue to pray for his other conditions. Quote Link to post Share on other sites
thegooftroopfla 18 Posted August 27, 2015 Author Report Share Posted August 27, 2015 Hopefully we make our year goal for him. It was to trick or treat not in a wheelchair at fort wilderness. It will be the first year in a long time he will be able to do that Quote Link to post Share on other sites
BradyBzLyn...Mo 2,023 Posted August 27, 2015 Report Share Posted August 27, 2015 What an incredible journey you've been on. I'm so glad that you were able to find some answers and the right doctors and treatments to help your son, and now others like him as well! I'm also hoping we'll get to see him come by when he meets the Fort goal at Halloween. :) Quote Link to post Share on other sites
red...Susan 37 Posted August 27, 2015 Report Share Posted August 27, 2015 Congratulations on the forward progress that has been made. Best wishes for even more in the future. Quote Link to post Share on other sites
thegooftroopfla 18 Posted August 27, 2015 Author Report Share Posted August 27, 2015 Absolutely we will try and swing by. Last year we were going to swing by, but he was in a wheelchair and he hates meeting people in his chair Quote Link to post Share on other sites
CCIntrigue...aka Gwen 547 Posted August 27, 2015 Report Share Posted August 27, 2015 Please tell your son we don't care whether he's in his chair or not. It's just such a blessing to meet the people we have been praying for! fladogfan aka Gretchen and BradyBzLyn...Mo 2 Quote Link to post Share on other sites
thegooftroopfla 18 Posted September 1, 2015 Author Report Share Posted September 1, 2015 We will do. Quote Link to post Share on other sites
Beckers 1,136 Posted September 1, 2015 Report Share Posted September 1, 2015 Please tell your son we don't care whether he's in his chair or not. It's just such a blessing to meet the people we have been praying for!And we will give him lots and lots of candy :) BradyBzLyn...Mo 1 Quote Link to post Share on other sites
thegooftroopfla 18 Posted September 1, 2015 Author Report Share Posted September 1, 2015 That should definitely get him there. Lol Quote Link to post Share on other sites
fladogfan aka Gretchen 259 Posted September 3, 2015 Report Share Posted September 3, 2015 How wonderful that the cause of his pain was discovered. Thanks to your diligence so many other people are finding hope. Thank You God Quote Link to post Share on other sites
Campingdad 3 Posted September 3, 2015 Report Share Posted September 3, 2015 Thank you. He still has medical issues, but were hoping one big hurdle is over. Really hoping we can get rid of the wheelchair. When we were leaving Baltimore the lead surgeon on the team said you might be able to throw that wheelchair away in a couple months. Our son looked at him and said no I want to give it to a kid that can't afford one. So that's our goal in January if the doctor signs off on everything. Give it to a kid in my zone.Hey Brother, Next time your in Baltimore look me up. I work at the oldtown firehouse downtown. My vote would be to avoid cherry hill and head for Ramblin' Pines Campground. Quote Link to post Share on other sites
thegooftroopfla 18 Posted September 7, 2015 Author Report Share Posted September 7, 2015 Thanks brutha. We will be back up in December. This time we stayed for most of the 6 months in otterbein and the last two weeks in federal hill by cross street. It would've been nice to have some coffee with some brothers. Campingdad 1 Quote Link to post Share on other sites
Campingdad 3 Posted September 9, 2015 Report Share Posted September 9, 2015 Up until May I was assigned to the big house not far from Otterbein Two blocks north of the baseball stadium. That house is the nations busiest, Steadman station. If y'all come back let me know. We'll have you over for breakfast. Quote Link to post Share on other sites
thegooftroopfla 18 Posted September 12, 2015 Author Report Share Posted September 12, 2015 We went there a couple times, actually bought at shirt from there. That's a big house. Do you guys have any access to the clock tower or is that all separate. I found the shower truck interesting. Lol. We will definitely be back up early January probably be there for New Years. I will let you know when it gets closer Quote Link to post Share on other sites
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